Thanks for taking the time to visit my website. I'd like to tell you a little bit about myself. I'm a wife and mother of 3 young children, Matthew 13, Ellie 10 and Freddie 6. I was first diagnosed with Breast Cancer in 2001 at the age of 36. Following Chemotherapy and Radiotherapy, I was in remission until a chance MRI scan in Feb 2005 for an unrelated problem, detected that the Cancer had returned. I was then diagnosed with Secondary Breast Cancer. The likely prognosis given in February was 18 months to 5 years. I then had to undergo aggressive Chemotherapy, but following the results of a recent bone scan, it was found that the Cancer is still spreading.
The treatment in Germany will cost thousands of pounds and for most people like myself, the opportunity for this is a dream. Many of my Family and Friends want to make this dream a reality and are making tremendous fund raising efforts, because without them, I would not be able to seek the treatment that I so obviously need and which is not being offered in this country.
Sunday, June 29, 2008
Friday, June 27, 2008
Wednesday, June 25, 2008
Charity Golf Day
I'd like to thank my dad, Geoff Killgallon for organising the event and collectively we'd like to thank everyone for their kind support and generous donations including,
LEAH in Caversham
Friends and fellow golfers.
A big thank you for the help in the organisation and administration goes to Jeff Gardner, Dave James, Len Jenkins and Kym Kennedy and others who contributed so much to make it a very successful day.
After allowing for bacon baps and £1 off the first drink (£290)and green fees (£240) for non-members of the Club at Mapledurham and including some cash donations from people who were unable to play on the day, together we raised the sum of £1430 for the Wigs to Wishes Fund. This sum was well beyond what we anticipated might be possible and we are truly grateful to everyone involved.
Thanks also goes to Victoria Jennings for the fantastic banner which will be great for other fund raising events also.
Tuesday, June 24, 2008
Family Fun Day at the Prince of Wales - 27th July
There will be live performances from: White Sunday (doing an acoustic set) - These guys played at the Prince on Friday also Liam O'Brian and Headline.
There will be various things for the children to do including a Bouncy Castle, Face painting and Games
A Raffle will be held with some fantastic prizes donated by local businesses.
There will be a bbq in the gardens - Food donated by Niki and Gary (landlady/landlord of the Prince), all profit from this will be donated to the fund.
Well done to Kate and Helen for organising this event. I know they are really pleased by the response they've had from those who really want to help.
Events like this will really make a difference for me. The treatments I'm undergoing in Germany at the moment are very expensive but the results are so encouraging.
Wednesday, June 18, 2008
I've informed Dr Dallas that I intend to have laser treatment (LITT) to the liver in Germany. I asked if this was available anywhere in the UK but Dr Dallas was a little vague and thought that they were doing something at Oxford but maybe not using heat treatment but freezing the tumours.
Had the Avastin today but because I'm having the laser treatment on 15th July, I can't have the next session of Avastin in 3 weeks and will have it in 6 weeks instead as Avastin can cause excessive bleeding if any operations are carried out.
Tuesday, June 17, 2008
I would like to thank all those involved in organising this event and to everyone who attended. I think we can all say what a lovely afternoon we had. We even got to combine the lunch with a birthday celebration. Happy Birthday Nicky.
Monday, June 09, 2008
Reply from Dr Draczynski, Leonardis Klinik
Basically Dr Draczynski said that when comparing the recent bone scan to one in 2005 (almost 3 years), it does not come as a surprise that there is a general increase in uptake. Something that should be done is to rule out any jeopardy for fracture. This is a particular concern for the thoracic and lumbar spine probably to some lesser extent also for the bony pelvis. This is an issue that I can address on the 18th June at my next Oncology appointment. Dr D then went on to say that given the fact that my liver obviously looks much better and we are looking into doing 2 laser treatments, the bony issue now has to be addressed.
Also the combination of Xeloda (chemo I'm due to start on 18th June) and Avastin is excellent for bony disease. He suggests that we wait and see what the effect of Xeloda and Avastin will be and restage by a regular bone scan in about 3-4 months and do the tumour markers on a 4-6 weekly basis.
The only thing urgent right now is to see whether any of these structures are prone to fracture. Otherwise I need to continue with the treatments.
This news has made me feel a lot better, but isn't it funny how the Berks remain silent on the results with no suggestions forthcoming and that I have to wait 3 weeks to discuss it with them. Communication is crap in this country!
Friday, June 06, 2008
Golf Charity match in memory of Jono Kirton
Bone Scan results
I'm really disappointed as there appears to be more spread in the bones. The report reads as follows:
Comparison is made with previous isotope bone scan from July 2005. Today's examination shows disease progression now involving multiple thoracic and lumbar vertebrae, several lower anterior ribs with diffuse progression throughout the bony pelvis, more prominent on the left. There are probably also deposits in the calvarium bilaterally.
I didn't realise that I hadn't had a bone scan at the Royal Berks since 2005! I suppose there is going to be more spread since then. The last bone scan I had was in Germany in October 2007 where they give you a printed picture so it is hard to compare to two results. The GP was surprised by the term "calvarium bilaterally" and she had a look on a medical google page. The report is saying that there is possible spread in the skull. She was quick to point out that this is not the brain! This is definitely a new spread.
I have however sent the result to the German Onc by email this evening and will have a chat with them about it next week.