Thanks for taking the time to visit my website. I'd like to tell you a little bit about myself. I'm a wife and mother of 3 young children, Matthew 13, Ellie 10 and Freddie 6. I was first diagnosed with Breast Cancer in 2001 at the age of 36. Following Chemotherapy and Radiotherapy, I was in remission until a chance MRI scan in Feb 2005 for an unrelated problem, detected that the Cancer had returned. I was then diagnosed with Secondary Breast Cancer. The likely prognosis given in February was 18 months to 5 years. I then had to undergo aggressive Chemotherapy, but following the results of a recent bone scan, it was found that the Cancer is still spreading.
The treatment in Germany will cost thousands of pounds and for most people like myself, the opportunity for this is a dream. Many of my Family and Friends want to make this dream a reality and are making tremendous fund raising efforts, because without them, I would not be able to seek the treatment that I so obviously need and which is not being offered in this country.
Flew out of Terminal 5, Heathrow without a hitch. Baggage arrived in Frankfurt with no problems. Flew into Frankfurt terminal 2 with BA and then had to get a free bus to terminal 1 and then get to the underground to the Hauptbahnof.
Arrived at the University Hospital for my appointment with Professor Vogel. Had an MRI scan to begin with, then whilst waiting on the operating table for the chemoembolization to begin, Prof Vogel said the liver tumours have now reduced by 20% - I was a little disappointed but he said that this was good as in his experience, a reduction too quick can often mean that they come back quicker and larger.
The procedure went ahead, anaesthetic hurt but injection of the chemo was not as painful although it did hurt a couple of times and when I complained Prof Vogel injected the chemo a little slower. Prof Vogel said after the procedure that it did not hurt so much because the tumours were smaller. I was then taken directly for a CT scan and then taken up to the day ward to rest for 3 hours as I can't move my right leg. This time I didn't need any extra pain relief or anti sickness. Only the one infusion which is given during the procedure. I felt quite good actually but did have a sleep for an hour and then sat chatting with Debra who accompanied me on this trip. Prof Vogel came round to discuss the procedure and findings. He was pleased with how it all went. I asked about the smaller tumours and he said they were nothing to worry about and they were almost gone. He does feel however that I need 1 or 2 more chemobolizations and then laser them off completely so they're all gone.
Andy, the driver from the Leonardis picked us up and it was a 3 and a half hour drive back to the clinic which Deb and I slept through most of it.
2nd Faslodex Injection
Had an appointment at the doctors today expecting to see Dr George but my appointment had been moved to the practice nurse. I did want to discuss with the doctor what has been happening recently and the fact that I have been having headaches and a pain in my neck. I'll just have to make an appointment with another doctor.
The Faslodex injection wasn't as bad as last time and my butt cheek doesn't seem to hurt quite so much!
Saw Dr Abbas today, it was just a brief meeting. I mentioned that my left hip has been hurting quite a bit and am getting referred pain down my left leg. I also mentioned that I'm continually blowing my nose which I thought was a side effect of the Avastin but he didn't say anything to that.
He looked at my notes and mentioned that chemo is being held in reserve. The Leonardis Klinik have said that they want me to start on Xeloda (capecitabine) but I don't think I've been feeling well enough to have it. I'll have to speak with the Leonardis about it again.
Just had the Avastin today which only takes half an hour to infuse but I was still at the hospital for 3 and a half hours.
Just returned from a skiing holiday in France with the family. Unfortunately I was told not to ski by my Oncologist so I went along to watch but not participate. This was our first time so what I haven't done I'm not going to miss! The kids had a wonderful time and Matt especially took to it like a duck to water.
We had a little hiccup mid week when Ellie fell on the slopes and had to be carted off to the Doctors by the Mountain Rescue team. She was actually okay but had hurt her knee and the Instructor insisted that she go to the doctor in case she had hurt herself more than we knew.
Apart from that the views were spectacular and the snow was great fun. Can't say I got much rest though!
Feeling ill again
Went to bed at 8pm last night because I didn't feel very well. Just felt tired and weary. Also had headaches and I especially have a pain down the right side of the back of my head and down my neck. Woke up this morning feeling sick too.
Left hip has been giving me problems since Saturday and I'm getting referred pain down my left leg which is making it uncomfortable to walk and drive.