Thanks for taking the time to visit my website. I'd like to tell you a little bit about myself. I'm a wife and mother of 3 young children, Matthew 13, Ellie 10 and Freddie 6. I was first diagnosed with Breast Cancer in 2001 at the age of 36. Following Chemotherapy and Radiotherapy, I was in remission until a chance MRI scan in Feb 2005 for an unrelated problem, detected that the Cancer had returned. I was then diagnosed with Secondary Breast Cancer. The likely prognosis given in February was 18 months to 5 years. I then had to undergo aggressive Chemotherapy, but following the results of a recent bone scan, it was found that the Cancer is still spreading.
The treatment in Germany will cost thousands of pounds and for most people like myself, the opportunity for this is a dream. Many of my Family and Friends want to make this dream a reality and are making tremendous fund raising efforts, because without them, I would not be able to seek the treatment that I so obviously need and which is not being offered in this country.
Thursday, May 29, 2008
Wednesday, May 28, 2008
I asked about the MUC-1 test but she did not have any details about this and preferred to wait and speak with the Registrar I saw on my previous visit to see if she had done anything about it. She wasn't sure if it was a test that could be done in Reading or whether they would have to send the tissue sample to Germany!
All in all I suppose there was progress today although I have to say that I asked for the Xeloda chemo 3 months ago (27/2/08) and I've still got to wait another 3 weeks.
Had the Avastin only today but I still spent over 4 hours at the hospital for a 15 minute consultation and a 30 minute infusion.
Tuesday, May 27, 2008
17th June - Summer Lunch
25th June - Charity Golf competition at Mapledurham Golf Club
29th June - Family Sponsored Walk
27th July - Family Funday, Prince of Wales, Caversham
25th October - "The Best Disco in Town"
Tuesday, May 20, 2008
Bone Scan appointment
Monday, May 19, 2008
Wednesday, May 07, 2008
I wanted to ask for a bone scan as I have been complaining about my left hip aching and getting referred pain down the left leg. A check for the MUC-1 receptor on the tumour specimen from original tumour removed in 2001. Also to start on Capecitabine to keep the disease stabalised.
Dr Barrett is still off so I saw her Registrar who has changed yet again. Dr Chadwick (previous Registrar) has gone back to Oxford which is a shame as I really liked him and he was really interested in what I had been doing with Germany. Funnily enough though, the new Registrar is German!
Anyway, she had read my notes before speaking with me and knew that I had been receiving treatment in Germany. I made all of the above requests, but, as usual with the Berks you don't get any answers straightaway unless you're talking to the Oncologist. The Registrar took all the details and said that she would ask Dr Barrett and I'd have my answers at the next appointment in three weeks which incidentally wouldn't be with her because she was going to be on holiday!
Had the Avastin and Pamidronate today.
Tuesday, May 06, 2008
I've been in touch with the Leonardis Klinik and they think it would be a good idea to have a bone scan as I have been complaining that my left hip has been aching. It would be good to know if the tumours in the bones are still stable.
Also the Leonardis Klinik have asked for a special test to be run on my original tumour tissue removed in 2001. The test is looking for a special gene called MUC1. Dr Kopic at the Leonardis says that if the test proves positive, there is another immune therapy that he would like to add to my treatment plan. I'll have to see how receptive the RBH are about these requests!