wigs to wishes.org.uk

The “Dawn Hughes Wigs to Wishes Fund” has been set up to enable me to receive further treatment at an Oncology Clinic in Germany where they have had a high success rate in stopping the spread of Cancer in patients and giving them the best possible chance of remission. The Berkshire Cancer Centre have informed me that there is little chance of my Cancer going into remission with the treatment available in this country.

Thanks for taking the time to visit my website. I'd like to tell you a little bit about myself. I'm a wife and mother of 3 young children, Matthew 13, Ellie 10 and Freddie 6. I was first diagnosed with Breast Cancer in 2001 at the age of 36. Following Chemotherapy and Radiotherapy, I was in remission until a chance MRI scan in Feb 2005 for an unrelated problem, detected that the Cancer had returned. I was then diagnosed with Secondary Breast Cancer. The likely prognosis given in February was 18 months to 5 years. I then had to undergo aggressive Chemotherapy, but following the results of a recent bone scan, it was found that the Cancer is still spreading. The treatment in Germany will cost thousands of pounds and for most people like myself, the opportunity for this is a dream. Many of my Family and Friends want to make this dream a reality and are making tremendous fund raising efforts, because without them, I would not be able to seek the treatment that I so obviously need and which is not being offered in this country.

Wednesday, January 28, 2009

Bone Scan results

Got the results today. Bit disappointing as there has been further spread. The report reads as follows:

Comparison is made to previous study from May 2008. Today's examination demonstrates disease progression with increased uptake now seen in the calvarium (skull), right shoulder, sacrum and right hip in addition to the previously demonstrated spinal and remaining pelvic metastases.

I gave Dr Barrett a copy of the email received from the Leonardis Klinik and she was quite agreeable to some of the recommendations including organsing a CT scan which will be used as a baseline assessment and to start chemotherapy in two weeks. The Leonardis Klinik suggested 3 different chemo regimes and Dr Barrett was in agreement with two of them so it has been decided that I'll start on Gemzar and Mitoxantrone.

We discussed some of the other suggestions in the email which aren't available in this country. Extreme Drug Resistance Test (EDR). Dr Barrett said she'd heard that Germany were doing these tests on tumour tissue to determine what chemo's work best against your cancer (very similar to the chemosensitivity test which I've had in the past) but this was not available in the UK. She said that she would be trying out chemo's on me anyway regardless of the outcome of any such test because the options are getting a bit thin on the ground!

The email from the Leonardis Klinik also mentioned artemisinin plus photopheresis which are for supportive care. Again these are not readily available here so will have to ask the Leonardis for some further advice regarding this.

So, here we go again, another round of chemo. I was given some information on the chemos and it looks like I won't be losing my hair but who knows what sort of reaction I'll have. It does mean however a long day spent at the Berks receiving treatments because I've still got to have Avastin and Pamidronate. Although these two haven't stabalised the spread in the bones I'm still hoping that they have had some positive effect and that the situation could have been far worse without them!


Post a Comment

<< Home