Bone Scan results
Got the results today. Bit disappointing as there has been further spread. The report reads as follows:
Comparison is made to previous study from May 2008. Today's examination demonstrates disease progression with increased uptake now seen in the calvarium (skull), right shoulder, sacrum and right hip in addition to the previously demonstrated spinal and remaining pelvic metastases.
I gave Dr Barrett a copy of the email received from the Leonardis Klinik and she was quite agreeable to some of the recommendations including organsing a CT scan which will be used as a baseline assessment and to start chemotherapy in two weeks. The Leonardis Klinik suggested 3 different chemo regimes and Dr Barrett was in agreement with two of them so it has been decided that I'll start on Gemzar and Mitoxantrone.
We discussed some of the other suggestions in the email which aren't available in this country. Extreme Drug Resistance Test (EDR). Dr Barrett said she'd heard that Germany were doing these tests on tumour tissue to determine what chemo's work best against your cancer (very similar to the chemosensitivity test which I've had in the past) but this was not available in the UK. She said that she would be trying out chemo's on me anyway regardless of the outcome of any such test because the options are getting a bit thin on the ground!
The email from the Leonardis Klinik also mentioned artemisinin plus photopheresis which are for supportive care. Again these are not readily available here so will have to ask the Leonardis for some further advice regarding this.
So, here we go again, another round of chemo. I was given some information on the chemos and it looks like I won't be losing my hair but who knows what sort of reaction I'll have. It does mean however a long day spent at the Berks receiving treatments because I've still got to have Avastin and Pamidronate. Although these two haven't stabalised the spread in the bones I'm still hoping that they have had some positive effect and that the situation could have been far worse without them!
Comparison is made to previous study from May 2008. Today's examination demonstrates disease progression with increased uptake now seen in the calvarium (skull), right shoulder, sacrum and right hip in addition to the previously demonstrated spinal and remaining pelvic metastases.
I gave Dr Barrett a copy of the email received from the Leonardis Klinik and she was quite agreeable to some of the recommendations including organsing a CT scan which will be used as a baseline assessment and to start chemotherapy in two weeks. The Leonardis Klinik suggested 3 different chemo regimes and Dr Barrett was in agreement with two of them so it has been decided that I'll start on Gemzar and Mitoxantrone.
We discussed some of the other suggestions in the email which aren't available in this country. Extreme Drug Resistance Test (EDR). Dr Barrett said she'd heard that Germany were doing these tests on tumour tissue to determine what chemo's work best against your cancer (very similar to the chemosensitivity test which I've had in the past) but this was not available in the UK. She said that she would be trying out chemo's on me anyway regardless of the outcome of any such test because the options are getting a bit thin on the ground!
The email from the Leonardis Klinik also mentioned artemisinin plus photopheresis which are for supportive care. Again these are not readily available here so will have to ask the Leonardis for some further advice regarding this.
So, here we go again, another round of chemo. I was given some information on the chemos and it looks like I won't be losing my hair but who knows what sort of reaction I'll have. It does mean however a long day spent at the Berks receiving treatments because I've still got to have Avastin and Pamidronate. Although these two haven't stabalised the spread in the bones I'm still hoping that they have had some positive effect and that the situation could have been far worse without them!
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