wigs to wishes.org.uk

The “Dawn Hughes Wigs to Wishes Fund” has been set up to enable me to receive further treatment at an Oncology Clinic in Germany where they have had a high success rate in stopping the spread of Cancer in patients and giving them the best possible chance of remission. The Berkshire Cancer Centre have informed me that there is little chance of my Cancer going into remission with the treatment available in this country.

Thanks for taking the time to visit my website. I'd like to tell you a little bit about myself. I'm a wife and mother of 3 young children, Matthew 13, Ellie 10 and Freddie 6. I was first diagnosed with Breast Cancer in 2001 at the age of 36. Following Chemotherapy and Radiotherapy, I was in remission until a chance MRI scan in Feb 2005 for an unrelated problem, detected that the Cancer had returned. I was then diagnosed with Secondary Breast Cancer. The likely prognosis given in February was 18 months to 5 years. I then had to undergo aggressive Chemotherapy, but following the results of a recent bone scan, it was found that the Cancer is still spreading. The treatment in Germany will cost thousands of pounds and for most people like myself, the opportunity for this is a dream. Many of my Family and Friends want to make this dream a reality and are making tremendous fund raising efforts, because without them, I would not be able to seek the treatment that I so obviously need and which is not being offered in this country.

Wednesday, January 07, 2009

Emailed Leonardis Klinik for help

I rang Christine yesterday at the Leonardis Klinik as I'm getting so desparate to sort out this pain in my right leg. She asked me to email them with all the details of what I'm experiencing currently and the medication that I've been trying.

Here's some of the information sent:

Following the x-ray on 3 November, the pain in my right leg started around 16 November 08. I tried combinations of pain relief including paracetamol, oramorph, diclofenec, co-codamol. Today I'm now on a regime of:

drugs for pain - Paracetamol 500mg - 2 tablets 4 times per day
Tramadol 50 mg - 3 times per day
diclofenec SR 75 mg - One in the morning and one at night
Morphine Sulphate Tablets (MST) 10mg - once at night
Nozinan - 25mg - once at night

scale of pain: I am unable to put pressure on the right leg when trying to walk. The pain was usually worse in the morning when I think the pain relief had worn off and therefore slow release diclofenec was prescribed and MST at night. Now the pain is worse in the afternoons and early evenings. The pain moves around the area of my hip but is mainly in the buttock. On a scale of 1-10, it is easily 8. It has now affected the way I walk and it would appear that I have one leg shorter than the other (which of course I haven't but that is how I have started walking to relieve the pain in the right leg).

Possible side effects of pain medication - tired and sleepy during the morning and most part of the day plus feeling a little sick.

There is generally no pain when at rest although sometimes a dull ache/throb in the right leg.

27 November - radiotherapy to left pelvis

23 December - radiotherapy to right pelvis

Radiotherapy has not made any difference to the pain in my right leg.

Hopefully the Leonardis will come back with some suggestions as I'm finding it hard to cope with the constant pain and feeling so tired and ill all the time.


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