Appointment with Dr Barrett
I did finally organise an appointment with Dr Barrett for Monday afternoon although they had to squeeze me in at 1pm. We arrived early for the appointment and only had to wait 5 mins before we were called in.
Dr Barrett's first words were "what have I been up to since I last saw her because my haemoglobin had dropped considerably again". I've not really done a lot although I wasn't surprised when she said this because over the last few days I have been feeling really tired and lethargic again but couldn't quite pinpoint it to a low blood count. Dr B suggested another blood transfusion so this was left to me to organise either at Sue Ryder this week if poss or at the Berks which would probably be next week. I don't really want to wait until next week because it is school half term.
She then went onto say that there was an inevitability about chemo but it was a matter of when was the right time, especially as my bloods had dropped so dramatically again. She suggested that we wait another 4 weeks before making a decision and hoped that my body would recover more before embarking on the chemo. Dr B went through my notes (which was a bit disappointing as I thought she might have done this before our meeting and had a treatment plan in mind!). Anyway, she said that we were running out of chemo options as I had had so many and asked if I'd had certain chemos which I knew I had. She then suggested that we should recycle a couple which I'd had quite a few years ago. I know for a fact that they will make my hair fall out again, which she confirmed. I asked about Herceptin. I haven't had this for a few years and when it was stopped, the theory was that we would save it for a later date when I might need it as it was doing some good at the time. Dr B agreed that we could try this again.
Dr B wants to see me again in 4 weeks and would like to keep to a Monday appointment again. She did however apologise for the fact that my original appointment time got cancelled. She would like to keep continuity for my treatment between herself and Dr Dallas which I'm more than happy with as I've met Dr Dallas on a number of occasions and she is very nice and very capable.
Now all I need to do is speak to Sue Ryder and see if we can organise the blood transfusions over there. Unfortunately Dr B wants 4 units which may mean an overnight stay at Sue Ryder.
Dr Barrett's first words were "what have I been up to since I last saw her because my haemoglobin had dropped considerably again". I've not really done a lot although I wasn't surprised when she said this because over the last few days I have been feeling really tired and lethargic again but couldn't quite pinpoint it to a low blood count. Dr B suggested another blood transfusion so this was left to me to organise either at Sue Ryder this week if poss or at the Berks which would probably be next week. I don't really want to wait until next week because it is school half term.
She then went onto say that there was an inevitability about chemo but it was a matter of when was the right time, especially as my bloods had dropped so dramatically again. She suggested that we wait another 4 weeks before making a decision and hoped that my body would recover more before embarking on the chemo. Dr B went through my notes (which was a bit disappointing as I thought she might have done this before our meeting and had a treatment plan in mind!). Anyway, she said that we were running out of chemo options as I had had so many and asked if I'd had certain chemos which I knew I had. She then suggested that we should recycle a couple which I'd had quite a few years ago. I know for a fact that they will make my hair fall out again, which she confirmed. I asked about Herceptin. I haven't had this for a few years and when it was stopped, the theory was that we would save it for a later date when I might need it as it was doing some good at the time. Dr B agreed that we could try this again.
Dr B wants to see me again in 4 weeks and would like to keep to a Monday appointment again. She did however apologise for the fact that my original appointment time got cancelled. She would like to keep continuity for my treatment between herself and Dr Dallas which I'm more than happy with as I've met Dr Dallas on a number of occasions and she is very nice and very capable.
Now all I need to do is speak to Sue Ryder and see if we can organise the blood transfusions over there. Unfortunately Dr B wants 4 units which may mean an overnight stay at Sue Ryder.
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