PET Scan
Left the clinic at 7am for a 3 hour drive to Stuttgart for the PET scan.
Had an injection and had to lie down for 30 mins. Felt a bit wousy and then a further injection which gave me a stomach ache for 5 mins. Then had the scan. Had to lie still for 1 hour. By the end of it my left shoulder and arm were killing me and I couldn't wait to itch my nose!!
Unfortunately the scan results were not as good as I was hoping. There is an increase in size of two of my tumours. One in the hip and one in the back midway down. Obviously I was disappointed with the results. The PET scan specialist did say that although things did not look good he said that there was no spread to the liver or lungs and therefore we are only looking at one type of metasteses which would be easier to treat.
Had a meeting with the Oncologist later in the day back at the clinic and they said that it is not as bad as it seems although they were a little concerned about the size of the tumour in my hip. They want me to arrange an MRI scan and then discuss with my UK Onc the possibility of radiotherapy to this area. They are worried that if the tumour damages anymore tissue, I may fracture the hip and even worse end up needing a hip replacement (god forbid, I've seen how these sort of operations can affect younger people).
They have also advised that I start on another chemo asap (Navelbine) so when I see the UK Onc next week I'm going to have a lot of sweet talking to do.
Had an injection and had to lie down for 30 mins. Felt a bit wousy and then a further injection which gave me a stomach ache for 5 mins. Then had the scan. Had to lie still for 1 hour. By the end of it my left shoulder and arm were killing me and I couldn't wait to itch my nose!!
Unfortunately the scan results were not as good as I was hoping. There is an increase in size of two of my tumours. One in the hip and one in the back midway down. Obviously I was disappointed with the results. The PET scan specialist did say that although things did not look good he said that there was no spread to the liver or lungs and therefore we are only looking at one type of metasteses which would be easier to treat.
Had a meeting with the Oncologist later in the day back at the clinic and they said that it is not as bad as it seems although they were a little concerned about the size of the tumour in my hip. They want me to arrange an MRI scan and then discuss with my UK Onc the possibility of radiotherapy to this area. They are worried that if the tumour damages anymore tissue, I may fracture the hip and even worse end up needing a hip replacement (god forbid, I've seen how these sort of operations can affect younger people).
They have also advised that I start on another chemo asap (Navelbine) so when I see the UK Onc next week I'm going to have a lot of sweet talking to do.
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